Author: Emma Kress

I’m writing this from bed, as I wrote the previous three columns. I have a connective-tissue disease called Ehler’s-Danlos syndrome. Connective tissue links everything in our bodies: It’s in and around our muscles, organs, joints, veins, etc. I have been in pain for as long as I can remember, spent more time in doctors’ offices than I care to admit and been flattened periodically for months at a time. Last year, from my bed, I watched leaves and then snow fall. It’s surreal and disorienting, a down-the-rabbit-hole experience, to watch the world move along as you stay still. But even…